Tuesday, March 4, 2014

Sunnyfield Auxiliary Central Coast; Minutes of Meeting 25 February 2014 at CLUB TUGGERAH,


Attending  14; Apologies  1  
The meeting was opened by the Vice-Chairman, Dee Ellem at 11.15 am.. She welcomed all and advised that Bob Jones was progressing well after surgery.We look forward to seeing him at our next meeting. 
We noted with sadness the news of the passing of Paul’s son Logan.

Minutes of the previous meeting 
The minutes of the 28 January meeting had been previously circulated.
It was moved and seconded that they were correct as read.    Anita/ Moira.

Business arising from previous minutes
During the previous meeting, we agreed to submit comments to ADHC on the proposed State Disability Inclusion Bill. Two comments were emailed to the instrumentality. These covered the following

1      "The role of the Community Visitor should be strengthened to protect individual people with intellectual disability from the possibility of receiving inadequate service. This is particularly necessary where there is no family member to protect the interests of an individual whose intelligence has been assessed as below normal and who would be regarded as having diminished responsibility for decisions."  
The proposed Act is appropriate for a person whose only disability is physical. It seems to downplay the needs of people with intellectual disability.

2     "A specific item of the Bill should make reference to the National Standards for Disability Services - December 2013. (www.dss.gov.au)"

The proposed Act makes strong reference to Employment Screening, but little mention of the need for suitable qualifications. The National Standards has strong reference to this aspect. 
Further, the Standards impact fundamentally on most of the broader material in the Draft, and its inclusion as a basic tenet of the Bill would seem of critical importance.

We should not expect a reply.
Treasurers Report
John tabled an up to date report on our financial situation. We have a current credit balance of $432.13.
Report approved and accepted John/Ros

Correspondence
As usual, our correspondence consisted of emails. All have been filed and dealt with 

General Business
We had no guest speaker for this meeting. Instead, we had a useful group discussion in which we were able to explore the impact and difficulties we expect in the near future as the NDIS and Person Centred funding is applied to our families.

It is quite apparent that we have little reliable information on the effects we, as elderly parents of people with high support requirements, can expect from the new system.

It would seem that we should be able to gain some knowledge from the experiences of similarly placed family members who have already been subject to the changes which are occurring in the Hunter district.

It was therefore agreed that we should move to obtain specific details for ourselves. We believe that the information we require must be on file as recent experiences inside the NDIS hierarchy, and we should organise ourselves to have these experiences outlined to us from a high ranking NDIS  official.

In achieving this information, we agreed that we should combine to clearly voice our concerns. As an initial step, we will be contacting Jill Hall MP, the member for Shortland, and who has previously been helpful to us, to see if she can facilitate a meeting for us. We are hopeful  for this, but otherwise we will make direct representation to NDIS. All our effort will be to arrange a suitable meeting for the occasion of our next  monthly meeting on 25 March. We are allowing for the possibility of having the meeting in Belmont or Charlestown if necessary. 
Bruce Conn moved that we should allow for the cost of a bus hire if necessary for this exercise. Seconded Allan

The progress on this will be distributed as soon as available.

The meeting closed at 12.45


NEXT MEETING    25 March 2014

Saturday, February 1, 2014

Social meeting of Allambie Auxiliary 25 Jan 2014

Hello Everybody
some very brief notes as to what was discussed/agreed. 
Please feel free to email any errors or omissions. 

1. Start earlier, say 1230 and BBQ/socialise first, 2 x p.a. (All)

2. Ask Caroline Cuddihy if she would like to promote the Auxiliary parent/family mutual support group on Sunnyfield's web page and to new families. (CH)

3. Ask Caroline Cuddihy if we can get a guest speaker 1x p.a. + maybe Centrelink & ADHC? (CH & All)

4. Document & circulate depersonalised summary of funding currently being received by present Auxiliary Members and broader Sunnyfield. (CH) This to assist families making sure they are obtaining all support funding generally available.

5. Approach & get updates from Family Advocacy & Della Bosca("Every Australian Counts") re NDIS and ADHC & circulate. (CH)

6. Review with Caroline Cuddihy Holiday/Respite red-tape; develop/improve relationships with ?Caroline Bruce's Life'n'Leisure and ?CareAway etc. (CH)

7. Next Meeting: perhaps August, date TBA. (All & CH)

8. Auxiliary funding for factory pathways - CC to review options & timing? (CC & B. Mendham)

9. Please email J&B Mendham re availability for Bunnings Sausage BBQ. (0730-1600 Fridays 21mar, 23may, 6jun, 20jun, 15aug, 19sep, 17oct, 14nov, 12dec). (All) Help is needed to keep this fundraising event bringing  donations into the Auxiliary


Thursday, January 23, 2014

Proposed Agenda for social meeting 25 Jan 2014

Apologies

Topics for discussion

Auxiliary meetings, office bearers, frequency/schedule of meetings 

NDIS - status and discussion re likely progress

NSW NEW BILL FOR A MORE INCLUSIVE SOCIETY - discussion

Auxiliary website - comments?

ADHC



Treasurer’s Report

Tuesday, March 19, 2013

A provocative view on charity

All
this is worth a look...


 Dan Pallotta: The way we think about charity is dead wrong

Central Coast Auxiliary March 2013 meeting


Hello again everybody (and welcome new e-mailers),
 
Our March meeting is ready to go next Tuesday 26 March at the usual place and time.
 
There is a lot happening currently. Please refer to the Notice of Meeting attached. It would be great if we can get a nice big attendance this time to impress our visitors and make them feel welcome.
 
Also attached are the minutes of the February meeting and also, courtesy of Judi Fernance, a copy of the NDIS release No 35 (*) which is very relevent to us and is also relevent to all the material recently forwarded to us about the NDIS provisional rules.
 
Look forward to us getting together on Tuesday
 
regards
Allan Holswich

(*) This update was emailed by NDIS to registered users and can be obtained if you register first here.

Monday, March 11, 2013

Draft NDIS "Launch" Rules

This is one expert opinion about the NDIS rules that are about to be put into law.  Read carefully, are you happy that this is the future you want?

From: Vern Hughes [mailto:vern@partnerships.org.au]
Sent: Friday, 8 March 2013 9:56 AM
To: Colleagues
Subject: Full Report: NDIS “the world’s worst system of individualized funding”
NATIONAL STEERING GROUP  

Self-Directed Services and Personal Budgets
REPORT: DESIGNING NDIS
NOW AVAILABLE
“I have spent 22 years trying to design decent and affordable systems of individualized funding in the UK. I’ve also been lucky enough to have had the opportunity to explore other international models. I’m really hoping that the Australian system will go on to be the world leading system that Australians with disabilities deserve.

However, if the early designs that I have seen were implemented then I think that Australia is in danger of building the world’s worst system of individualized funding. I do not make these remarks lightly, nor for rhetorical effect.

In summary I believe:

1. The current design does not reflect international or Australian learning about best practice in individualized funding systems.
2. The resistance to acknowledging human rights and real entitlements will undermine both the quality and sustainability of the model.
3. The resistance to accepting the reality of rationing will have the perverse consequence of promoting the worst kinds of indirect rationing.
4.  In principle, the concept of insurance could be very helpful, but it is not currently being used effectively to guide the design of the NDIS.
5.  The current design is in conflict with human rights and lacks any basic trust in the competency of Australians with disabilities to make their own decisions.
6.  The proposed model does not do enough to harness the efficiencies that come from shifting responsibilities to citizens and making resources flexible.
7.  The model is hyper-centralised and risks eroding the responsibilities of states, communities, services and families.
8.  The current model is designed in a way which will create significant inflationary pressure and will damage social capital at every level.
9.  The proposed design involves an unnecessarily expensive and centralized bureaucratic structure.
10. The current design is not innovative, but bureaucratic, and it leaves no room for innovation at any level.”
Vern Hughes


There is also a copy of the full report on the Aux website,  click here to read and learn...

Wednesday, January 9, 2013

Central Coast Auxiliary


Hello everybody,
 
 
We are not meeting in January, but we decided to have lunch on the usual meeting day, ie 22 January and bring family and/or friends along if this suited. You are therefore invited!
 
Hope you had a pleasant time over Christmas and best wishes for the New Year.
 
regards   Allan

p.s. NEXT MEETING   26 February 2013 – IMPORTANT MEETING with ADHC
A notice of meeting will be distributed