Family Advocacy Communiqué June 2011

Please find attached the latest edition of Communiqué June 2011, along with a letter in regards to the retiring of the Journal Families for Change.

Kind regards,

Rhiannon Brodie

Communications Officer

Family Advocacy

John Lennon's IMAGINE

A small uplift  -  enjoy!

June 2011 edition of NSW CID E-News.

Subscribe | Forward to a Friend | Change my details | Contact Us | Website Welcome to the June 2011 edition of NSW CID E-News. There are plenty of opportunities and ways to have your say in the next month. See below for details on supporting our Mental Health Campaign as well how to  be involved in consultations about personalising disability support in NSW. NSW CID is also running some forums and events which we welcome all people to attend. We love to receive feedback and ideas at NSW CID so please feel free to get in touch if you have something to share. Kind Regards – The NSW CID Team June 2011 In this edition we have: NSW CID Mental Health Campaign Inclusion of all people with intellectual disability in the NDIS NSW CID Healthier Lives Forum Albury NSW CID & Medicare Locals Project NSW Government Person Centred Approaches Consultation Summit Developmental Disabilities and Challenging Behaviour Conference Mental Health Inquiry Resources Events NSW CID Mental Health Campaign – It’s not too late! Thank you to all the NSW CID Members and supporters who took the time to alert both Federal and State Ministers to the needs of people with intellectual disability who also have mental illness. If you have not already taken part in this campaign and would like to lend your voice to this issue - please click here.  Inclusion of all people with intellectual disability in the NDIS The National Council on Intellectual Disability (NCID) has launched a position statement, which strongly opposes the removal of intellectual disability from the Productivity Commission's proposed eligibility framework. To read this statement and to find out how to lend your support to this campaign click here.   NSW CID Healthier Lives Forum Albury - 19 July - Book Now! NSW CID will be hosting this event at the Commercial Club in Albury. There will be 10 guest speakers, who will cover a range of topics on how to get good health care and stay healthy. NSW CID looks forward to meeting people from Albury and surrounding areas at this forum. To find out more details and to book your place click here.  NSW CID & Medicare Locals Project As part of our health advocacy work NSW CID will be undertaking a new project. It will aim to promote collaboration between local intellectual disability groups and Medicare Locals and responsiveness by Medicare Locals to the needs of people with intellectual disability. This is a 12 month project and will involve the development of resources which will be available on our website. NSW Government Person Centred Approaches Consultation Summit, 7-8 July This two day summit will launch an extensive consultation process around the NSW Government's individualised funding reforms to the disability sector. To find out how you can have our say at this or 1 of the 100 consultations that will happen in the next 12 months please click here. Developmental Disabilities and Challenging Behaviour: Research to Practice and Policy Conference, 30 September The Faculty of Health Sciences and Brain and Mind Research Institute, University of Sydney and NSW CID are pleased to be presenting this conference. Leading International and Australian researchers will present the latest developments in supporting challenging behaviours in people with autism spectrum disorders and intellectual disability. Guest Speakers include Professor Eric Emerson, Professor Ian Hickie, Professor Bruce Tonge and many more. To see the full details click here.  Mental Health Inquiry The Federal Government has just announced an inquiry into Commonwealth Funding and Administration of Mental Health Services. NSW CID will be making a submission to this timely inquiry. To find out the terms of reference and how you can make a submission please click here.  Resources Apps for Literacy Support, Greg O'Connor from Spectronics has created a list of Apps for iPad and iPod Touch/iPhone that support the literacy needs of people who struggle with reading and writing. Click here   for more details. Presentations from the National Disability and Carer Congress held in May 2011 in Melbourne are available for download from National Disability Services (NDS)’s website. Click here for more information and to download presentations. Dougie Herd’s Speech at The BiG Event 2011 available here. Touching Base, ‘Policy and Procedural Guide for disability service providers supporting clients to access sex workers’. This resource contains information which is vital to understanding how to support the sexual rights of people with disabilities. Click here for more details. Office of the Public Guardian booklet, ‘Substitute Consent – What the Law Says’- Gives outlines on who can give consent to medical and dental treatment when the person concerned is unable to. Click here for more details. Legal Aid NSW has launched a new resource: "Disability Support Pension" and it is available in Arabic, Chinese, English, Farsi, Turkish and Vietnamese. Click here  to order.  Events Family Advocacy, ‘Let’s get Started’ Workshops on starting school for families with a member with developmental disability, Kingsford 29 June, Mittagong 30 June, South Hurstville 1 July. Click here for registration information.  TAFE, Social and Occupational Skills for Youth with Aspergers, various dates and locations, contact Simon Piggott on 9472 1239 or 0434 322 451 or email Simon.Piggott@tafensw.edu.au for more information. Accessible Arts, Studio Artes Artists exhibition, Parliament House, 5 - 26 July. Click here for more information. Carers NSW, Free workshop for carer support group facilitators, Tweed Heads Friday 1 July Sydney Thursday 7 July. Click here or call (02) 9280 4744 for more details. NSW Government, state-wide consultation process on person-centred approaches for the NSW disability service system, 7 and 8 July, Homebush. Click here for more details and to register. CDS, Person Centred Graphics Facilitation: 2-day Workshop, 7/8 July, email mcarrick@med.usyd.edu.au or call 8878 0500 for more information or to register. Softball for people with ID, Blacktown International Sports Park Rooty Hill, Registration day July 10, email genmanager@softball.net.au for more info and registration. Achieve Australia, Working with Challenging Behaviours, 12 July,  email BISevents@dhs.nsw.gov.au for more information or to register. Baptist Community Services, July School Holiday Program for children with a mild disability and who live in Hornsby or Kuring-gai areas, 4, 6, 11, and 13 July for Primary aged children, and 5,7,12, and 14 July for High school aged children, call 8438 8800 for details and to register. Recreation Rendezvous, one year theatre project for adults with disability, Lane Cove, 20 July, phone 9420 8555 or email olga@recrend.org.au for more information.   Fragile X Awareness Day, 22 July, for more information contact Fragile X Association of Australia – click here to go to website. Northern Area Recreation Association (NARA), Indoor soccer for people with intellectual disability, Thornleigh, 23 July, call 9452 4993 for more information. Autism Spectrum Australia (Aspect), 'Recipe for Success' a Positive Behaviour Support Workshop for parents/carers, Newcastle, 26 July to 28 July More information including how to register or jwoodward@autismspectrum.org.au. Autism Advisory and Support Service, 'Walking in Autistic Shoes', 28 July, Liverpool West, phone 9601 2844 or email info@aass.org.au for more information and to register. Foundations Forum Inc, 'How can I know what someone else needs?' ,Understanding the Needs of People with Communication Difficulties Workshop, 28 July, North Ryde.   Click here to download flyer and registration form. Nominations for the 2011 National Disability Awards have been extended to Friday 29 July, click here to download a nomination form and nomination guidelines or call 1800 440 385 to order hard copies. IDRS, How to Support Clients with Intellectual Disability around Common Legal Issues (going to court, Guardianship, Consumer issues), 29 July, BISevents@dhs.nsw.gov.au for more information or to register. Down Syndrome NSW, Growing older with Down syndrome- an information/support event for parents and family carers of people with Down syndrome 35 years and over, 30 July, email info@dsansw.org.au to book. This event is free but bookings are required. Every Australian Counts Campaign, DisabiliTea on Tuesday 2 August. Click here to sign up to receive a kit to get you started. National Cerebral Palsy Awareness Week (CP Week), 31 July-6 August, Click here for more information. Fighting Chance Australia, Supported Accommodation Models for People with Disabilities – Past, Present, Future?, Parliament House, 3 August, email fightingchancefund@gmail.com for more information. National Respite Conference, Tweed Heads, 9-11 August, email edward.thomas@nationalrespite.com.au or click here for more information. TABISS, Promoting Social & Play Skills in children with Autism Spectrum Disorders/Intellectual Disability, 18 August, email tabiss@interactiondisability.com  for more information or click here for more details. CCWT/ACWA, Social Integration: Explore how to assist people with a disability to make friends and be more included in their community presented by Fiona McGill Aug 22. Click here  for more details. EDuCARE, Sue Larkey: Teaching Strategies and Behaviour Support, Autism / Asperger's Syndrome - 29 August, Newcastle, email Educare-Admin@hnehealth.nsw.gov.au for more information. Hawkesbury Nepean Community Legal Centre, seminar about discrimination in schools for parents and carers of a person with a disability, Richmond, 12 September, ph 0425 380 575 or email info@autismsupport.org.au for more information. 5th International SRV (Social Role Valorization) Conference, ‘Getting the good life: From ideas to action’, 21-23 September, Woden. Click here for more information.  Faculty of Health Sciences and Brain and Mind Research Institute, University of Sydney with the NSW CID, "Developmental Disabilities and Challenging Behaviour: Research to Practice and Policy", 30 September, email Imelda.noti@sydney.edu.au for more details or to register. CCWT/ACWA, Teaching Functional Skills: Explore strategies to teach practical skills to people with an intellectual disability so they can become more independent presented by Fiona McGill Oct 24, 25. Click here  for more details ECIA NSW 24th Annual Conference 2011, Sydney, 27-28 October, click here  for details. TABISS, Making the most out of visiting the Psychiatrist with a person with an Intellectual Disability, 18 October, email tabiss@interactiondisability.com  for more information or click here for more details. NSW CID provides an information service for people with intellectual disabilities, their families and carers. To get some help from our friendly staff, please email info@nswcid.org.au, or call (02) 9211 1611 or Toll Free: 1800 424 065 (Regional Areas) This newsletter was intended for m.clayton@sunnyfield.org.au

WARRINGAH DISABILITY NEWSLETTER No 258 - 24/06/11

Hello!

The newsletter starts with another disco, a theatre project, STAR expo, global games at INAS, and holiday activities in Lane Cove.  Young carers can disco bowl at Dee Why, attend the Aspect camp in October, or Camp Breakaway.  Carers are alerted to phone groups for male carers and carers of someone with mental health, Triple P, the brain injury get together and mental health support group.  There are also a session on starting school, SOCS for youth with Aspergers, two events to help high school leavers plan, and the opportunity to become a carers NSW carer representative.

Financial matters include a fundraising trivia night for Fighting Chance, carers Week grants, a reminder that Warringah Council grants end soon, and a website on scholarships.  Resources include a DVD on the August census, website for early literacy, National Diabetes week, a webpage on brain injury on ADHC website, websites for holiday fun, and a website for working with fathers.  You are invited to complete two surveys on support needs of people with physical disability, to hold a DisabiliTEA for the NDIS, volunteer for Recreation Rendezvous or Northern Beaches Interchange.

Workshops and conferences address manual handling, knowing your rights, suicide intervention, assistive technology in education, mental health, respite, group leadership, autism, dementia, plus the NSW summit on person centred approach, and a seminar on models of supported accommodation.  Various courses are also offered by Reconnect Mental Health, IFP and Northside Community Forum.

Your comments and suggestions are welcome, as always!  The next newsletter will be sent on 11 July.

Regards, Marjorie Janz, Disability Information Officer, Warringah Council.

Located at Dee Why Library, Pittwater Road and St Davids Avenue, Dee Why NSW 2099.

Phone 9942 2686, fax 9942 2371.  Also janzm@warringah.nsw.gov.au.  

NSW Government Person Centred Approaches Summit

Putting people with a disability at the centre of decision making

An invitation from the Minister…

I am hosting this summit and extensive consultations around NSW because like you, I believe people with a disability, their carers and families, need to have a say about the services they receive and have control over their futures.

We know that the people best able to contribute to this process are people with a disability, their families and carers. That is why I am inviting you to attend this summit.

We are also working with peak bodies such as the Disability Council of NSW, NSW Council of Social Services (NCOSS), National Disability Service NSW and consumer organisations to seek their input.

If you can’t attend the summit, there will be many more opportunities for you to contribute your ideas. This summit is just the first step in a year long process of successive consultations and reviews. The next stage is more than 100 local consultations held throughout NSW which you’re invited to attend. Your input will help guide us in delivering a collective and collaborative solution to bring about the much needed reforms to disability services in NSW.

Thank you for joining me in this important process. I look forward to hearing from you either during the summit, in one of the later consultations or via your written submission. We need to hear from you, and I am confident that with your help we can create a service system that truly puts the person at the centre of decision making… right where they should be.


The Hon. Andrew Constance MP

Minister for Ageing

Minister for Disability Services

DETAILED AGENDA HERE
WHEN: Thursday, 07 July, 2011  -  Friday, 08 July, 2011

Where: Acer Arena Sydney Olympic Park, Homebush, NSW(AUS) 2127

View Summit Website

RSVP: Monday, 27 June, 2011 

NDIS DisabiliTEA

Can we count you in?

The time has come to register to hold a morning tea in support of the campaign for a National Disability Insurance Scheme.

Registrations went live yesterday and already 211 different morning teas have been registered across Australia.

This is an unprecedented response and will make the DisabiliTEA Australia’s largest disability action. It will be the largest event in two ways: firstly it will occur simultaneously in hundreds of locations nationwide,  secondly more people will attend than any previous disability event in Australia’s history. The DisabiliTEA will be a clear demonstration to the parliament of Australia of the passion in the community for a National Disability Insurance Scheme.

You can be part of the action:

All you need to so is register to hold a morning tea on the 2^nd of August. Anyone can host a tea at your home, at work or at a local coffee shop.  You can invite your friends, family, neighbours, carers and colleagues. Organisations big and small can host a tea and invite clients, staff, supporters and local community members as can any Australian who wants a better deal for people with a disability.

To register your morning tea visit:

http://everyaustraliancounts.com.au/disabilitea/

The DisabiliTEA event will closely follow the handing down of the final Report of the Productivity Commission on the NDIS to the Government, which is due to happen at the end of July.  Your morning Tea will be a great opportunity to keep spreading the word about the NDIS in the community.

Events such as the DisabiliTEA are vital to help raise broader community awareness of the need for an NDIS to ensure that people with disabilities, their families and carers finally get the support and care that they need.

The NDIS isn’t just going to automatically happen. We need to campaign hard across the country to convince the politicians that it is the right thing to do, both for people with disabilities and their families  and for the entire nation.

When you register your Disabilitea you will receive a kit in the mail to help you host your tea. The kit will include:

• DisabiliTea Activities sheet
• Invitation for friends, families, colleagues
• MP invitation
• Poster to promote your event
• Campaign brochure, postcards and stickers
• DVD
• Join the campaign sign-up sheets

So put your hand up and say Every Australian Counts.

Register to host a Disabilitea

Thanks for your support

Daniel Kyriacou State Campaign Coordinator-NDIS New South Wales

NDIS - Visit your local MP

Next month, the Productivity Commission will hand over its final report to the Government.

Our goal is to make sure the Federal Government accepts the recommendations of the Productivity Commission and commits to introducing the National Disability Insurance Scheme (NDIS).

We have a challenging political environment to make this happen.

That's why we need you to go along to your federal member and recruit them to be a supporter of the Every Australian Counts campaign. You can use our easy Find Your MP tool on the website.

There are briefing notes to guide you on your visit, but your story is what's important.

Your local MP needs to hear first hand about the challenges faced by people with a disability and their families every day.

They can read all about the facts and figures, but meeting you and hearing your story is what will make a difference in gaining their support.

Change involves people voicing their views and making it clear to politicians what they want.

Direct meetings with people from their electorates make a difference to politicians. They need to hear your story.

If you've already met your MP, let us know how it went.

We need every MP to count.

John Della Bosca
and the Every Australian Counts Team 

www.everyaustraliancounts.com.au

PS. Each week we'll be naming a campaigner of the week who has made people count.

If you would like to nominate yourself or someone else email a photo to winsoftheweek@everyaustraliancounts.com.au (it can come from their facebook profile) and why you've nominated them.