Wednesday, August 31, 2011

Auxiliary Meeting 6 August


The Minutes from Sunnyfield Members Auxiliary Meeting held at Allambie on 6th August, 2011 are now listed in the "Minutes" section (on the bottom right of this blog).

Mr. Jonathan Harris (from Harris Friedman Lawyers) attended and answered questions on Enduring Powers of Attorney, Enduring Guardianship and Wills and Trusts - handouts offered by Mr. Harris are attached for your information .  

Just confirming next Executive Meeting – at 1.00pm, Saturday 10 September 2011, at Sunnyfield. 
Sunnyfield AGM – at 6.00pm, Wednesday 19 October, 2011, at Doherty Centre, Chatswood .
Next Auxiliary Meeting – at 2.00pm Saturday 12 November 2011, at Sunnyfield.

Regards Clare Stewart & Robyn Chapman

Monday, August 29, 2011

Wills, Guardianship and Power of Attorney


We recently had Jonathan Harris talk to the Auxiliary about this matter and he kindly circulated some publications from his company that gave preliminary advice on these important matters (email me if you need copies).
This document from the Benevolent Society & Legal Aid also provides a very useful overview if you wish to further review your families' options.

Monday, August 22, 2011

National Carer Strategy


Caroline Cuddihy brings this to our attention (many thanks Caroline)

For the first time in our history, Australia has a National Carer Strategy.  On 3 August 2011, the Minister for Families, Housing, Community Services and Indigenous Affairs, Jenny Macklin MP, the Minister for Health and Ageing, Nicola Roxon MP, and the Parliamentary Secretary for Disabilities and Carers, Senator Jan McLucas launched the National Carer Strategy, which includes $60 million in new funding over the next four years.

The Strategy delivers on the Australian Government’s commitment to better respond to the needs of carers, and helps to ensure carers have the opportunity to take part in all aspects of society, including the chance to participate fully in work, community and family life.
We thank all those people who took the time to attend consultation workshops or provide written submissions to inform the development of the Strategy.
For more information, go to www.fahcsia.gov.au.



National Carer Strategy
Department of Family, Housing, Community Services and Indigenous Affairs
Disability and Carer Policy Branch
DE2, Tuggeranong Office Park, Greenway ACT 2900 

nationalcarerstrategy@fahcsia.gov.au 

Friday, August 19, 2011

WARRINGAH DISABILITY NEWSLETTER No 262 - 19/08/11


The newsletter starts with two discobility, soccer and recreation, two camps, three art/music projects and captioned performances at Glen Street Theatre.  Carers are told about an open day for students of Years 4 & 5, two events for young carers, three events for parents of children with autism, events organised by Muscular Dystrophy NSW, several parenting seminars, a reading training study, training on acquired brain injury, a session for university students with a disability. 

Financial matters include estate planning sessions, sale of a shower trolley, grants by Coles and Artstart 2011, a government traineeship and disability support jobs, training for board members.  Resources include two useful reports, two useful phone numbers, disability aids, lawn mowing service, the report on Caring for Older Australians, a Stay Safe Plan, and information on incorporation.  You are invited to participate in Daffofil Day (cancer), Tartan Ribbon Day (Stroke recovery), sailing, and two surveys (after acquired brain injury, ageing).  You can nominate a volunteer of the year, and have your say about the Supported Living Fund.  There is also an update on the National Disability Insurance Scheme.

Workshops address computer learning, discrimination disability, oral health, behavioural incidents, eating disorders, fraud and corruption, Alzheimers, mental health, engaging men in family based programs, web accessibility, the L’Arche concept.  There are also a school leaver expo, strategies to assist students with ADHD, post secondary options workshop and a Texpo and open day at Vision Australia.  Conferences deal with challenges of adult ADHD, move to learn, community development, the good life, disability employment, men and family relationships.  There are also two opportunities for further study.

Your comments and suggestions are welcome, as always!  The next newsletter will be sent on 2 September.


Regards, Marjorie Janz, Disability Information Officer, Warringah Council.
Located at Dee Why Library, Pittwater Road and St Davids Avenue, Dee Why NSW 2099.
Phone 9942 2686, fax 9942 2371.  Also janzm@warringah.nsw.gov.au.
Warringah supports the Every Australian Counts campaign

Friday, August 12, 2011

Supported Living Fund ADHC Consultations


Hi
Attached please find
1.       a letter from ADHC inviting people with disability and families to consultations about the Supported Living Fund.
2.       An ADHC information sheet about the SLF
3.       A schedule of dates for consultations in the metropolitan area
The consultations provide you an opportunity to contribute your thoughts about
  • what supported living means to you
  • what help you want or need to make supported living a reality including help to
    • learn more about supported living
    • plan
    • implement your plan
    • anything else
Feedback from the consultation will show ADHC what it needs to do to ensure that the Supported Living Fund is helpful to you and your family member with disability.
Please attend a consultation. We need your input.
If you are unable to attend a consultation, please contribute your ideas via an ADHC email address established specifically to receive feedback slffeedback@dhs.nsw.gov.au
If you want to discuss anything about the consultation, please call 02 9869 0866 or 1800 620 588
Belinda


Belinda Epstein-Frisch AM
Family Advocacy

-------------------- PO Box 502 Epping NSW 1710 --------------------
Suite 305 16-18 Cambridge St Epping 2121
ph: 02 9869 0866  Freecall: 1800 620 588  Fax: 02 9869 0722

At the National Press Club in Canberra, Dr Rhonda Galbally told it like it is!

"What does it mean to be an Australian with a disability?  What is life like in the lucky country, in this land of the fair go? One answer we might expect would be, A citizen with the same rights as everyone else!

But if you have a physical, sensory, psychiatric, or intellectual disability, what is life really like?  Many Australians would say,  It's better, isn't it? The bad old days are gone - Aren't they?

The horror and abuse that went on in institutions, that's all gone now, hasn't it. The poverty, the discrimination, the exclusion, the fear and hatred, that's all ancient history, isn't it?

I would love to be able to say yes, that is all ancient history, but I can't.  I'm here to tell you that despite this nation enjoying the longest economic boom in its history, very little has changed for most Australians with a disability.

Young people living in group homes - forced to go to bed every night at 5 pm because the staff say so, unable to help themselves to food from the locked fridges, unable to go out for a walk through the locked doors!

A young man who was assaulted by a fellow resident in his group home, but who continued to live under the same roof as his abuser because there was nowhere for either of them to go!

People who will sleep in their wheelchairs tonight because there's no-one around to help to get them to bed!

Families who become so desperate they abandon their children in respite care or in hospital because they can no longer care for them at home!

There are so many stories to tell - and each with its own heartbreaking punch line. You will find them in this report - Shut Out.  And 'Shut Out' is a unique document.  It's unique because the Rudd Government established a nation-wide consultation, asking people with disabilities and their families two important questions: What is your life like now, and what would you like your life to be like?

No Australian Government had ever asked people with disabilities and their families those questions before!  The response was overwhelming!

What I saw and what I heard was profoundly shocking, and utterly shameful. Here we are, in one of the wealthiest countries in the world, yet I heard that most Australians with disabilities and families struggle to access the very necessities of life.

These statistics are outrageous. But where is the outrage?  Why is it that we lack the will to close this gap?  I believe our lack of will reflects our low expectations. We accept the differences in outcomes because somewhere deep down we don't really believe kids with disabilities have potential.

Families who are struggling with high rates of physical, emotional, and financial stress.  Ageing parents spoke movingly of sharing and supporting their son or daughter.  But the dire lack of suitable accommodation and then young adults dream to move out of the family home into a home of their own.

The dire lack of suitable accommodation and lack of adequate support put an end to that dream.  Now, both children and parents are old, and stuck in desperate situations. It is these aged parents who are in the tragic position of hoping that their children die before them.

'SHUT OUT' graphically demonstrates the ways in which all systems are failing people with disability and their families. And unfortunately things are only going to get worse.

Australia-wide people see that we clearly cannot continue the way we are going. To do so, would be both socially and financially irresponsible even scandalous.  We need a safety net for individuals and we need a safety net for the country, a national disability insurance scheme would be such a safety net.

There are many misconceptions in the community about such a scheme, but in reality the concept is very simple.  A national disability insurance scheme would provide funding for early intervention, essential care, support, therapy, aids and equipment, home modifications and training and most importantly.  Kt would provide this early on, in order to maximise potential, facilitate independence and insure planned transitions over the life course.

The scheme would, in short, provide people with what they need, when they need it, to ensure that they reach their full potential.

And the scheme would provide assistance to all people with a disability no matter how they become disabled. And it will put an end to the current inequities that see people receiving different levels of support depending on how the disability is acquired.

It shouldn't matter whether you are born with a disability, acquire one through a car accident, or develop one through a serious illness, everyone should be able to get what they need when they need it in order to lead as full a life as possible.

Such a scheme will have an in-built incentive to maximise independence.  Such a scheme will have an in-built incentive to maximise opportunities for participation and productivity. And because participation and productivity would be maximised, there would be savings.  Not only in the disability service system, but in health, income security and other programs.

The idea is uniting the disability sector.  For the first time in this country Carers Australia, the Australian Federation of Disability Organisations, and National Disability Services have formed an alliance to campaign for a national disability insurance scheme.

Disability is in fact the responsibility of every Minister in every portfolio across every level of government. It's the responsibility of every Premier of every state. It's the responsibility of every Mayor and every CEO in every municipality across the country. Disability must be on everyone's agenda!

Take a copy of ' Shut Out' with you today, or download it from the website and read it, and get others to read it too.  And when you read this report you'll find that many of the people you are reading about are not so different from you. They have the same hopes, they have the same needs, they have the same rights, they live in your cities - in your suburbs and in your towns. But they are shut out of the life that you take for granted.

Read about your fellow Australians, and ask yourself, How would you feel if the person who was shut out, was you?" 

Full report on: www.lisainc.com.au :  DVD available from LISA Inc.

Wednesday, August 10, 2011

National disability proposal is warmly welcomed, and the drama will be in the detail


Purple Orange welcomes the Australian Government’s release of the Productivity Commission’s final report on the future of disability support (a link is provided at the end of this alert).
With its principal focus and recommendation being a national disability insurance scheme, this report is the latest milestone in the journey towards disability reform since the idea of national disability insurance first emerged in the 2020 Summit.  As such, the report’s recommendations signal a welcome paradigm shift in the way our country understands and funds disability support.
Robbi Williams, CEO of Purple Orange, said the proposed scheme would distribute funding according to assessed need, and on an individualised basis so the recipient can create support arrangements that are right for that person’s situation.
“This approach is something that we have been exploring and advocating for a number of years.  It is great to see it in the proposed scheme,” said Mr Williams.
With its emphasis on needs-based funding entitlement, the proposed scheme will take Australia to the front of the pack internationally, as it offers a new level of assurance for people living with disability and their families.  Purple Orange sees this as a very encouraging development, though as always, the drama could be in the detail.
“A good idea is at its most vulnerable during implementation.  The disability community will be paying close attention to how the scheme is set up.  There will be many challenges along the way, any one of which could result in people being disappointed,” Mr Williams said. 
“For example, the National Disability Insurance Scheme would need to include methods to assist people to explore what is genuinely possible in their lives, especially in terms of taking up valued roles in community life.  Otherwise, people may opt for what they’ve been used to through the current system which has been underfunded and constrained and this may not always be for the best.”
Importantly, Purple Orange believes the Australian Government needs to ensure people living with disability have a genuine stake in the leadership of the scheme.  This means there needs to be community-nominated people living with disability involved in the scheme’s design and implementation, and on the scheme’s board.
The Government has set aside $10m to undertake detailed policy work on several themes, including how assessment is carried out, how quality is understood, how pricing is developed, and how the disability sector adapts to the new arrangements, including workforce development.
Purple Orange would add to this list the theme of how best to build community capacity so that people living with disability are welcomed and included in community life, particularly given the Productivity Commission highlighted this important issue in their final report.   Also added to the list would be how best to evolve a person’s support arrangements so they don’t focus solely on the assistance of paid helpers, but on other elements that uphold people’s autonomy and active citizenhood. 
“This is an important opportunity for Australians living with disability, and the family members in their lives, to move away from being second-class citizens and instead take up their rightful place as active members in our communities,” Mr Williams said.
Purple Orange encourages the Australian Government to take the earliest opportunity to give its commitment to the detailed elements of the Commission’s recommendations, including funding levels.  Using the Productivity Commission’s own estimates, the required additional funding for this scheme translates to around 80c per Australian per day.
“In our view, this is a very small price to pay to have a scheme which provides all Australians a degree of comfort that if they experience a major disability, there will be appropriate funding and arrangements to enable them to continue with their life aspirations.  Doing the right thing for people living with disability and their families is fundamental to the implementation of the scheme,” Mr Williams said.
“Meanwhile, given the recommended commencement of the scheme is 2014, and in selected areas only, a key question is how people and families can access additional assistance between now and the proposed full availability of the scheme in 2019.  It is well-known that current arrangements are deeply inadequate, so we need early signals from the Commonwealth, State and Territory governments on how they can increase funding in the shorter term.” 
You can access the Government’s media release (containing a link to the full report) by clicking here or copying and pasting the following link into your browser –
http://www.pm.gov.au/press-office/productivity-commissions-final-report-disability-care-and-support

Robbi WilliamsChief Executive OfficerJulia Farr Association

EVERY AUSTRALIAN COUNTS: Campaign Alert - We did it!




      Click here to view a plain text version of this email
We did it!

The Government has just announced that they share the vision for a National Disability Insurance Scheme and will begin laying the foundations for its introduction.

They also released the final report by the Productivity Commission into the NDIS.

See the Government's announcement here and the Productivity Commission's report here.

We're trawling through the detail of the announcement and the report, but first we wanted to say a huge thank you.

You made this happen. By coming together, supporting the campaign and taking action, you showed our politicians that Every Australian Counts.

The Government's announcement today shows that when we speak up, they are prepared to listen.

But as the Government has made clear, there is more to do.

We are waiting for the Opposition to come out in strong support of the Productivity Commission's recommendations.

And over the coming weeks and months we will all want to work to ensure the government gets the details right.

But first let's take some time to celebrate this colossal win for people with disabilities, their families and carers.

After that, let's roll up our sleeves and work to make the NDIS the best it can be.

John Della Bosca
and the Every Australian Counts team 
www.everyaustraliancounts.com.au

PS. Feel like having a celebration? Watch this now.

Federal Government makes a welcome start in establishing the NDIS, but a long journey ahead


National

News Update

10 August 2011
NDS MEDIA RELEASE
The Federal Government will take the first steps to establish a National Disability Insurance Scheme (NDIS), as recommended by the Productivity Commission and advocated by the disability sector.
An NDIS would transform the provision of support services to Australians with significant disability. NDS congratulates the Government on its endorsement of the vision articulated in the Productivity Commission's final report on Disability Care and Support and looks forward to strong progress in implementing the reforms.
Today, Prime Minister Gillard, Ministers Macklin and Shorten and Parliamentary Secretary McLucas released the Productivity Commission's final 1,000-page report on Disability Care and Support. While supporting the Productivity Commission's vision, the Government has yet to endorse its recommendations or commit the additional funding required to implement the NDIS beyond an allocation of $10 million to support a newly-established technical advisory group. It will respond to the detailed recommendations in the report at a later date.
In the plan set out in the report the NDIS would be implemented in stages and not fully implemented until 2018-19.  Regional launch sites would operate in 2014 to enable the new system to be tested and fine-tuned. In the 2012 Federal Budget NDS would like to see forward estimates reflect a funding commitment to support these launch sites. The NDIS must be built on the security of a guaranteed and sustainable funding commitment.
NDS strongly supports the Productivity Commission's conclusion that while full implementation of the NDIS would require an additional $6.5 billion a year, the social and economic returns will outweigh its cost.
In its 18 month inquiry into the disability services system, during which it received over 1,000 submissions, the Productivity Commission found the current system to be fragmented, underfunded, inequitable and providing little choice to people with disability and their carers. The Government accepts that patching up the existing system would be insufficient to fix these problems.
The involvement of State and Territory governments is critical to the successful implementation of an NDIS. The Prime Minister will seek agreement at COAG later this month to establish a Council on Disability Reform consisting of Treasurers and Disability Ministers.
The support of the Federal Coalition is also critical and NDS hopes that the Coalition continues to offer support for the establishment of an NDIS.
For the not-for-profit disability services sector the prospect of reform that Minister Jenny Macklin today described as "transformational change" is both exciting and daunting. An NDIS will require a much larger workforce appropriately skilled; and gearing up not-for-profit organisations to work effectively in a competitive, individualised funding environment. Meeting these challenges will require investment in building the capacity of the sector if the value of not-for-profit organisations in creating social capital is to be retained and strengthened.  This is a matter to which the technical advisory group should give considerable attention.
The Government has said that, consistent with the Productivity Commission's recommendation of a parallel National Injury Insurance Scheme, it will discuss with the States and Territories how to extend catastrophic injury insurance to all people not currently covered, regardless of the cause of their injury.

Monday, August 8, 2011

Preparing for an ADHC consultation "Living Life My Way"


During August and September, ADHC is holding consultations across NSW inviting people with disability and families to contribute their ideas for a person centred system.
In addition, we attach the revised ADHC Discussion Paper that will be discussed at the consultation.
Belinda

Belinda Epstein-Frisch AM
Family Advocacy

-------------------- PO Box 502 Epping NSW 1710 --------------------
Suite 305 16-18 Cambridge St Epping 2121
ph: 02 9869 0866  Freecall: 1800 620 588  Fax: 02 9869 0722

Saturday, August 6, 2011

WARRINGAH DISABILITY NEWSLETTER No 261 - 5/08/11



The newsletter starts with a discobility, two art exhibitions, a social club and drama project, midnight basketball, powerchair football nationals and rugby league game.  Carers are told about the Ignatius camp, several parenting courses (including dealing with back chat), camera prize for young carers, dad’s telegroup counselling, acquired brain injury training day, the Bradfield Park program, vacancies in respite and other services.  They are reminded of the statewide consultations on person centred approaches, forum on positive directions and on care planning.

Financial matters include the Parkinsons Unity Walk, Aspect’s Comedy Night.  There are grants from Manly Council, Sport and Recreation, Arts and Disability, Optus, NRMA;  scholarships for dance and vision equipment; competition for photography and film.  There is also a position in Rydalmere.  Resources include an audio library of Christian literature, Mental Health Week resources, a DVD on volunteering, a mobile paediatric occupational therapist, and a parent infoline.  You are invited to participate in Brain Injury Awareness event, the Leaders for Tomorrow program, training from EveryAustralianCounts, a poster design competition, volunteer for a beach project, advocacy and campaigning, health issues, and resources for obese clients.  Workshops address computer learning, incorporation, school leaver expo, training by TABISS and HACC.  Conferences deal with professional development, social work, developmental disabilities.

Your comments and suggestions are welcome, as always!  The next newsletter will be sent on 19 August.

Regards, Marjorie Janz, Disability Information Officer, Warringah Council.
Located at Dee Why Library, Pittwater Road and St Davids Avenue, Dee Why NSW 2099.
Phone 9942 2686, fax 9942 2371.  Also janzm@warringah.nsw.gov.au.

Friday, August 5, 2011

Sunnyfield's Cultural and Art Program

Sunnyfield's Art Program details are found here.

A survey about Resourcing Families – for families

Hopefully, you have heard about Family Advocacy’s new initiative, Resourcing Families, that was launched in 2010. We now enclose details about a survey relating to Resourcing Families. Your responses will be anonymous.

Why your involvement is important

We are keen to find out if any aspect of Resourcing Families  has been useful for you and for any person with disability in your family. 

Your feedback  will be very useful in shaping the work of Resourcing Families and, hopefully, in assisting people with disability and their families. Others will benefit from your insights.

We would be very grateful for your input – however brief. We anticipate the survey will take between 5 and 30 minutes – depending on the length of your responses.

How you can complete the survey

·         Complete the survey online by clicking on the following link: www.surveymonkey.com/s/ResourcingFamiliesSurvey
·         Obtain a hard copy by calling Resourcing Families on 02 9869 7753 or 1800 774 764 (free call for NSW non metro callers)
·         Calling Resourcing Families and giving your answers verbally over the phone.

When the survey closes

You have until Thursday 8 September 2011 to complete the survey.

In addition to the feeling of well being you will gain from taking part, if you send in an email noting your participation by 8 September, you will enter a draw to win The Odyssey DVD – a DVD featuring presentations by some truly inspirational speakers. 3 participants will win! Your survey responses will remain anonymous.

Getting more information about the survey and/or Resourcing Families

Of course, if this email reminds you of the existence of Resourcing Families and you haven’t been to the web site for a while, there continue to be additions. See http://www.resourcingfamilies.org.au

If you would like more information, you can contact us by return email or on 9869 7753 or 1800 774 764 (free call to NSW non metro callers).

Thank you for taking the time to read this email and take part in the survey.

I hope all is well and look forward to hearing from you.

Regards
  
Kim Roots
Advocacy and Leadership Development Coordinator


-------------------- PO Box 502 Epping NSW 1710 --------------------
Suite 305 16-18 Cambridge St Epping 2121
ph: 02 9869 7753 Freecall: 1800 774 764 Fax: 02 9869 0722

Tuesday, August 2, 2011

Changes to Special Disability Trust legislation proposed


National

News Update

2 August 2011

Changes to Special Disability Trust legislation proposed

In response to ongoing community concern about the onerous restrictions on the establishment and operation of Special Disability Trusts (SDT), the Government has released draft legislation (and explanation) designed to make it easier for people to contribute to an SDT.
SDTs are designed to assist family members of people with severe disability to make private financial provision for the future care and accommodation needs of that person with severe disability.
Specifically, this draft legislation will:
  • provide a capital gains tax (CGT) exemption for assets transferred into an SDT for no consideration;
  • extend the CGT main residence exemption to SDTs;
  • provide a CGT exemption for the recipient of the principal beneficiary's main residence, if their ownership interest ends within two years of the principal beneficiary's death; and
  • ensure equivalent taxation treatment amongst SDTs established under different Acts.
The changes would apply from the 2006-07 income year, to align with when SDTs were first able to be established.
The consultation time is short, closing on 12 August. Members wishing to comment can do so by contacting NDS or by making a submission to The Treasury at cgt_sdt@treasury.gov.au.

Contact Information:
Philippa Angley, National Policy Manager, NDS National, Ph 03 8341 4302, philippa.angley@nds.org.au