I do appreciate how hard it is for families with intellectual disabled relatives but sometimes it pays to reflect that one can overcome enormous obstacles. Here is a lady who is clearly very determined.
Any comments?
Monday, July 19, 2010
Wednesday, July 14, 2010
WARRINGAH DISABILITY NEWSLETTER No 233- - 13/07/10
The newsletter starts with a reminder about Disability Rocks, another NARA
Grants are on offer regarding sport and athlete development, mental health, the DISmyABILITY campaign, mental health NGO infrastructure. Carers can benefit from several payments and money-saving programs. An apartment vacancy, Jeans for Genes Day, second hand equipment for people with vision impairment, and a fundraiser for ACD NSW complete the financial section. Resources include a newsletter, a book, a website, as well as a school food garden program and submission on family violence. Your participation is invited regarding the next 5 years of disability services, Siblings Australia, the Mental Health Matters awards and the 2010 National Disability Awards, and a workshop on transforming campaigns.
Workshops and meetings involve angry adolescents, young carers, Makaton, rights, family law, working with aggression, understanding disability, a ground-breaking schizophrenia trial, eye health, suicide intervention, social role valorisation, the regional NDS network, courses for HACC staff and volunteers. Conferences focus on having fun, family quality of life, mental health.
Your comments and suggestions are welcome, as always! The next newsletter will appear in 3 weeks, on 3 August.
Regards, Marjorie Janz
Phone 9942 2686, fax 9942 2371. Also janzm@warringah.nsw.gov.au.
Wednesday, July 7, 2010
In Control, Sunnyfield, THE BIG EVENT, Penrith Aug 27
In Control believes that together we are better, and the Big Event is open to everyone. Unlike other events catering solely for professionals, the Big Event encourages people from all walks of like to attend. Family members and carers, key influencers from local communities, government agencies and service providers as well as professionals from the Human Services sector will find this event very applicable.
It is an invaluable opportunity to network, explore the support and services on offer, hear real-life experiences, and to find out the latest developments in this fast changing world of personalisation.
A copy of the brochure is here.
"We are very proud to be hosting Australia’s first ‘The Big Event’ supporting people to get a life...not just a service. The event brings together a host of people, all united by a common aim – to help people to be fully in control of their lives. This expo style event brings together 100 delegates, 8 presenters including high profile key note speakers".
Congratulations to Sunnyfield and Michaela Kennedy for this great family support
It is an invaluable opportunity to network, explore the support and services on offer, hear real-life experiences, and to find out the latest developments in this fast changing world of personalisation.
A copy of the brochure is here.
"We are very proud to be hosting Australia’s first ‘The Big Event’ supporting people to get a life...not just a service. The event brings together a host of people, all united by a common aim – to help people to be fully in control of their lives. This expo style event brings together 100 delegates, 8 presenters including high profile key note speakers".
Congratulations to Sunnyfield and Michaela Kennedy for this great family support
Robbi Williams (no not the singer), Julia Farr and Disability Standards
This Robbi Williams is the CEO of SA's Julia Farr Organisation and he has a solid uncompromising view of the goods and bads of disability. You may agree, you may disagree, but at least he provokes us to think about the lot we currently have for our disabled family members.
Here is an extract from his Blog...
As you may know, there is currently a review of the National Standards for Disability Services.
The Standards were implemented in 1993 with the goal of ensuring Commonwealth and State funded disability services have a positive impact in people’s lives. The Standards provide the framework for disability service provision expectations and apparently the Standards focus on ensuring services are addressing the principles and objectives of Commonwealth and State/Territory legislation, including assisting people to integrate into community, assisting people to achieve positive outcomes, such as Independence, and promoting in the community a positive image of people and enhancing their self-esteem (taken from the Commonwealth Disability Services Act 1986, which you can access by clicking here).
Well, if that’s true then the Standards have failed. Failed, failed, failed. Just reading the Shut Out Report (see the Sunnyfield December Blog Dr Rhonda Galbally "Shut Out" report for our posting) is more than enough evidence of that. Seventeen years on from the introduction of the Standards, there are many, many Australians living with disability who have not been assisted to integrate into community, who have not been supported to achieve positive outcomes such as independence, and where there are not sufficient positive images within community of people living with disability as valued citizens.
Read his commentary here...
Here is an extract from his Blog...
As you may know, there is currently a review of the National Standards for Disability Services.
The Standards were implemented in 1993 with the goal of ensuring Commonwealth and State funded disability services have a positive impact in people’s lives. The Standards provide the framework for disability service provision expectations and apparently the Standards focus on ensuring services are addressing the principles and objectives of Commonwealth and State/Territory legislation, including assisting people to integrate into community, assisting people to achieve positive outcomes, such as Independence, and promoting in the community a positive image of people and enhancing their self-esteem (taken from the Commonwealth Disability Services Act 1986, which you can access by clicking here).
Well, if that’s true then the Standards have failed. Failed, failed, failed. Just reading the Shut Out Report (see the Sunnyfield December Blog Dr Rhonda Galbally "Shut Out" report for our posting) is more than enough evidence of that. Seventeen years on from the introduction of the Standards, there are many, many Australians living with disability who have not been assisted to integrate into community, who have not been supported to achieve positive outcomes such as independence, and where there are not sufficient positive images within community of people living with disability as valued citizens.
Read his commentary here...
Friday, July 2, 2010
CID e-news – June/July 2010
Welcome to NSW CID e-news!
NSW CID E-news is a monthly email news bulletin to update NSW Council for Intellectual Disability (NSW CID) members and supporters of recent NSW CID activities and other news relevant to people with intellectual disability and their advocates.
Healthier Lives in Western Sydney Forum – June 22nd 2010
This day was a large success with over 170 people taking part in over 15 different sessions and presentations.
Some feedback received included:
“Just a note to let you know how much the guys enjoyed the forum on Tuesday. The dental information has been taken on board by the guys and already put into practice”
“I thought the day was excellent; the speakers giving good advice and in a way that was understandable for all attending.
"I know that it helped one of my Members to understand how important it is to take care of their health; they promised me they would have their hearing tested.”
Presentations and photographs will be available very soon on the NSW CID website.
Productivity Commission Inquiry into Disability Care and Support
NSW CID Speak Out Reach Out (SORO) Members have decided that they will be making an Easy Read Submission to this Inquiry.
As part of this process the members will be holding education sessions and focus groups to learn about the issues involved.
Members have been talking about the Inquiry and are keen to find out as much as possible before they make their submission.
People wishing to know more about the Inquiry can view information at the Productivity Commissions website:
http://www.pc.gov.au/projects/inquiry/disability-support
What is Intelligence ? What is Intellectual Disability ? Trevor Parmenter’s Festschrift
The Centre for Disability Studies has organised a Festchrift (a book honouring a respected person) for recently retired Professor Trevor Parmenter.
This includes a seminar with a range of speakers – all talking about intelligence and intellectual disability.
When: Saturday August 14th, 2010
Where: Kolling Building at Royal North Shore Hospital, St. Leonards
Time: 09.00 – 17.00
Cost: $55.
Speakers Include:
Prof. Roy Brown; Is Intellectual Disability Intellectual? The interactive cognitive, social and emotional dimensions of intelligence
Dr. Graeme Watts; Intellectual Disability and Spiritual Development
Prof. Patricia O'Brien; Your Paradigm: My Multiple Intelligences
Assoc. Prof. Keith McVilly; Evidence of Intelligence: Leadership in Our Time
The seminar will be followed by an early evening reception. More details and registration forms can be downloaded from here:
http://www.cds.med.usyd.edu.au/what-is-intelligence-what-is-intellectual-disability-trevor-parmenters-festschrift
New Being a Healthy Woman Resource!
The NSW Department of Health has produced a new resource for women with intellectual disability.
This is a book to help women with intellectual disability learn more about their health. It also provides a list of resources on disability for women with intellectual disability, their family members, carers or health care professionals.
It can be used as a teaching tool to help women with intellectual disability learn about their health. Congratulations to Kim Walker and Yvette Proud who represented NSW CID in the working party for this resource.
It is FREE!!! Download your free copy from: http://www.health.nsw.gov.au/pubs/2010/being_healthy_woman.html
Legislative Council Inquiry into services provided or funded by ADHC
The Legislative Council’s Standing Committee on Social Issues has called an Inquiry into Services provided or funded by the Department of Ageing, Disability and Home Care. (ADHC)
It is examining the quality, effectiveness and delivery of services provided by or funded by ADHC.
There are 7 terms of references including variations in service delivery, waiting lists, program quality between services and regions; the extent of unmet need and compliance with Disability Services Standards.
NSW CID will be preparing a submission for this Inquiry and will be consulting widely with members and service users in order to accurately reflect their experiences.
Anyone can make a submission. Submissions will be accepted until 6th August 2010.
For further information and the terms of reference please see:
http://www.parliament.nsw.gov.au/Prod/parlment/committee.nsf/0/012F70C073C28F78CA25774D0011708A
In-Control – Two upcoming events
Supported living Creating a home of one’s own with self directed support – August 9th – Parliament House
This seminar will showcase Homes West, Brisbane and My Place, Perth, two services that support people with disability in homes of their own with a combination of formal and informal support.
For more details click on: http://www.family-advocacy.com/images/pagesfile/In%20control%20supported%20living.pdf
The Big Event – August 27th 2010 – Penrith Panthers
This event will talk about Supporting People to Get A Life...Not Just A Service. In-Control’s aim is to help people to be able to be fully in control of their lives.
The day will have the theme of personalisation and self managed funding. There are over 8 guest speakers and the day is suitable for people from all walks of life.
For more details click on: http://www.cnet.ngo.net.au/content/view/48738/448/
Let's get started... getting ready for school and life – State-wide Workshops July & August
These workshops, organised by Family Advocacy, will provide information useful for families who would like their child with disability to attend an ordinary mainstream school, with appropriate support. Workshop locations are: Coffs Harbour, Wollongong, Burwood, Bankstown, Penrith, Hornsby, Gosford and Newcastle.
Click here for all the details: http://www.family-advocacy.com/events.php
ASSID Conference – September 29th – October 1st 2010 – Brisbane
The Australasian Society for the Study of Intellectual Disability annual conference will be held in Brisbane later this year.
The theme for this conference is “Seeking Excellence”, with presenters talking about topics such as partnerships, ethics, advocacy, social inclusion, individualised funding, health and communication.
There are many international guest speakers presenting at what promises to be an enlightening and exciting conference.
Details are available from: http://www.assid.org.au/
ADHC – Stronger Together 2 Consultations
During June and July 2010 the Minister for Disability Services, Peter Primrose is hosting a series of consultations across the state to inform the next phase of Stronger Together.
Stronger Together is the NSW Government’s 10 year plan for people living with a disability in NSW.
NSW CID has been invited to consultations on this matter and will be using the opportunity to inform the Minister and Department of some of the areas that we would like to be included in the Stronger Together 2 phase.
If you want to have your say more information can be found here:
http://www.dadhc.nsw.gov.au/dadhc/People+with+a+disability/Have+your+say+about+disability+services.htm
Also see the Family Advocacy brochure here on these consultations.
CID Information Service
NSW CID provides an information service for people with intellectual disabilities, their families and carers.
To get some help from our friendly staff, please email info@nswcid.org.au, or call (02) 9211 1611 or Toll Free: 1800 424 065 (Regional Areas)
Kind regards
The NSW CID Team
info@nswcid.org.au
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